I started writing in this blog as a way to blow off steam. I may not have posted much, and to be honest, it’s not like I’ve had a super terrible journey. Thus far, I’ve been pretty lucky and I’ve always kept that in the front of my mind when it comes to all my health stuff.
I sat down in the wee hours of the morning while everyone was asleep and compiled all that is currently happening in my journey right now. It hit a little harder than I was prepared. I’ve been so busy thinking about other things since we’ve moved that I hadn’t let myself really take in everything that I’m experiencing with my health and with my doctors.
This may all be thanks to part of my test results coming through yesterday from my last doctor visit. Really just the fact that I don’t have all the results yet does not sit well with me. And yes, I am that kind of person who signed up with LabCorp and Quest to receive all my test results after they’ve been sent to my doctors. I’m an MLT and I need to know my results.
Anywho, I only got part of my results and that part was positive. It’s pretty much a non-specific test but still has me on edge and got me focused on everything that’s going on. Currently I have 5 specialists, am being evaluated for another autoimmune disease, possibly starting biologics soon, need to get setup to do physical therapy, and probably will have surgery this summer. I can’t even imagine what else I would get myself into if I brought up any other concerns I have to my PCP.
If my body just gives up, I’m gonna be in a bad place. And trying to get my health straight, not even counting trying to eat right or exercise, is damn expensive. I’ve gotten to the point where I really can’t handle working full time in a core lab anymore, so I’ve had to lessen my hours (PRN in core lab and part time in Micro) which means less money. I got on the best insurance I could (a.k.a. EXPENSIVE) and still want to puke to think about adding on all the other costs for treatments coming up.
Needless to say, I still struggle with my needs, wants, and identity… In general and when it comes to my health. I never know what new and weird thing my body is going to do next and send my doctor on a witch hunt to find the culprit. (But seriously thankful for this new PCP with an attitude like that.) From muscle spasms, to hot and red knees, to my fifth bout of shingles on my damn face…
I guess I’ve always been kinda okay and laid back about these things because I hadn’t had a real concrete diagnosis and my symptoms didn’t stack up at the same time like they do now. I’m getting diagnoses, I’m getting more abnormal lab results and I don’t know how to really cope. I’ve been used to there being a sort of end point to things… like, I got my xray and did my course of steroids so we’re done with that issue even though it’s not resolved. I don’t think that’s going to be the case now with most things which maybe a good thing in the long term.
Who knows, maybe 2017 will be my healing year. I’m just tired of waiting to get through it.